What affect does CF have?

There is no cure for CF. CF affects many of the body’s organs including the lungs, digestive tract and the reproductive organs. Of all the organs affected, chronic lung disease is the most serious complication of CF and it gets worse with age.

The median survival age in Australia is currently 30 years. With early diagnosis, improved treatments and a better understanding of CF, the average life expectancy is increasing.

Australia has some of the best outcomes in patients with CF compared to the world. Australia, and in particular Perth and Melbourne has specialist clinics, staff and programs dedicated to improving outcomes in children.

 

Lung disease
Lung disease is caused by infections with bacteria in the lung. The lung is damaged by the bacteria and by the body trying to fix itself. This is called the inflammatory response.

You will have probably come across the names of lots of different types of bacteria. In particular Pseudomonas aerguinosa, Staphylococcus aureus, Haemophilus influenzae and Escherishia coli are commonly found in young children. We strongly recommend that you consult with your doctor if you have any questions about what infections with these bugs mean.
 

How do I prevent infections?
There is no way to guarantee your child will not get an infection. Bacteria and viruses are around us all the time and it is impossible to avoid them. The best way to prevent infections are:

  • Follow the infection control guidelines published by CF Australia
  • Keep and attend your clinic appointments even if your child is well
  • Continue your child's prescribed medications. If you are unsure about the medications talk to your doctor
  • Keep up daily physiotherapy
  • If you are concerned about your child see your doctor

Remember that it is following these simple things that make a difference.

The quality of life and longevity in patients with cystic fibrosis is attributed to better treatments, effective monitoring and surveillance of disease and preventative measures. CF lung disease hasn't changed. The way we approach treatment and prevention has.

To find out what we are doing to help better understand CF and to improve treatments click on the activities link above.

Last updated 13 November 2008